PhilHealth’s Support for National Rare Disease Week 2025

National Rare Disease Week 2025, taking place from February 22 to 28, 2025, is a significant event aimed at raising awareness about rare diseases and the support available to individuals affected by them. Organized by PhilHealth in collaboration with Bacong Pilipinas, this week-long event highlights the various benefits provided by PhilHealth for a range of rare diseases.

Understanding Rare Diseases

Rare diseases, often referred to as orphan diseases, are conditions that affect a small percentage of the population. Due to their rarity, individuals with these conditions frequently face challenges in obtaining proper diagnosis, treatment, and support. National Rare Disease Week seeks to address these challenges by promoting awareness and providing crucial information about available benefits.

PhilHealth’s Commitment

PhilHealth, the Philippines' national health insurance program, plays a crucial role in supporting individuals with rare diseases. During National Rare Disease Week 2025, PhilHealth is emphasizing the benefits available for various rare diseases. The following are some of the benefits provided:

1. Osteogenesis Imperfecta: P10,335

2. Maple-Syrup-Urine Disease: P20,670

3. Methylmalonic Acidaemia/Propionic Acidaemia: P20,670

4. Phenylketonuria: P20,670

5. Gaucher Disease: P15,795

6. Fabry Disease: P15,795

7. Hunter’s Syndrome: P21,255

8. MPS Type IV (Morquio Syndrome): P21,255

9. Pompe Disease: P11,310

Raising Awareness

The blue and green ribbon featured in the promotional materials for National Rare Disease Week symbolizes awareness for rare diseases. By highlighting these conditions and the available benefits, PhilHealth aims to reduce the stigma and increase understanding of rare diseases.

How to Get Involved

PhilHealth encourages everyone to participate in National Rare Disease Week by learning more about rare diseases and the support available. For more details, contact PhilHealth at (02) 8662-2588 or visit their website at www.philhealth.gov.ph.

Connect with PhilHealth on social media:

• Facebook: PhilHealthOfficial

• Twitter: @teamphilhealth

• Instagram: @teamphilhealth

• Email: [email protected]

Conclusion

National Rare Disease Week 2025 is an opportunity to shed light on rare diseases and the support available through PhilHealth. By participating in this event and spreading awareness, we can help ensure that individuals with rare diseases receive the care and support they deserve.

Reference: National Rare Disease Week